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trying to figure out how to submit myself as a case study cause what the everlasting fuck is wrong with me !
I need every single person to understand how horrible tumblr’s tagging system is
I go into the tag for epilepsy and its all flashing lights. We can’t use our own tag because people without epilepsy fill it up with improper warnings.
Use ‘flashing’ in place of ‘epilepsy’ in your tags. You aren’t warning people of epileptics, you’re warning us of flashing lights. Please please tag properly. Epileptics say this endlessly and constantly and it’s ignored. You are risking lives by doing this.
Here’s proof of what I mean:
First day using my cane went bad tbh-
I didn’t have it at the correct height so it hurt my shoulder for a while and now it’s sore and some people stared at me but it stopped me from falling so many times which is great I feel really supported by it which is great! My friends say that it matches my aesthetic which idek how it does but thank god it does
I’ve noticed this too but I don’t have frontal lobe epilepsy but since my first seizure I also noticed worsened autism and tic symptoms. I am photosensitive. Has anyone else noticed this?
Just a little something about me. I've had epilepsy for 3 years now and it is tough. This just came to my mind because I have memory loss everytime. That's the name of my epilepsy 'Temporal Lobe Epilepsy'. As I've started my new job, I've been forgetting a lot of things that I've done and when I explain something new to my friends or family, I then forget what I'm saying or what I've done at work 😓. But it's not only work, I lose my memory quick anytime and takes me a while to remember. Good thing that I have an appointment with my epilepsy nurse next month. Need to talk to them more 🤲🏻💖
After my blaze post about disability access in media was rejected due to reasons ungiven, I got in contact with Tumblr and pointed out their irony in rejecting my post but continuing to promote adverts that contain dangerous levels of flashing imagery, high contrast colours, and glitch effects.
They told me to screenshot/screen record any of these adverts I saw and report them to tumblr.com/support along with the approximate date and time and the website they redirect to.
Of course, for Photosensitive people who have been forced to witness these adverts, this sort of thing is nearly impossible. How can you have the wherewithal to report an advert whilst suffering from a seizure or migraine?
This is where Allies come in! Please can you collect any and all adverts you see that contain flashing lights at a rate of 3 Flashes Per Second or higher/Glitch Effects/High Contrast Colours? Then, on 26th March (Epilepsy Awareness Day) I suggest that we all send these adverts in on mass! It’ll help to get our point across that this is a REGULAR OCCURRENCE that affects an entire community of people, and hopefully we’ll be able to enact some actual change to make this website more accessible for disabled people!
If you are seeing this after 26th March, or worry you’ll not remember to do so by then, fear not! You can send the posts to Tumblr Support year round! It’s just useful to have a date to organise these things around for maximum impact.
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